the international council on medical & care compunetics


December, 2014

breast cancer

Successful Implementation of a Telemedicine-Based Counseling Program for High-Risk Patients With Breast Cancer

Pruthi S et al, Mayo Clinic Proceedings, 88(1)

An interactive audio and video telemedicine feasibility program was established to provide counseling on breast cancer risk-reducing strategies for underserved, high-risk Alaskan native women through a collaboration among the Alaska Native Medical Center, the Mayo Clinic Breast Clinic, Mayo’s Center for Innovation, and the Alaska Federal Health Care Access Network. The telemedicine model included a navigator to facilitate patient encounters (referrals, electronic records, and scheduling) and a subscription billing contract. Between January 1 and December 31, 2011, 60 consultations were provided to the Alaska Native Medical Center.
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3 January 2013 | No Comments »
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Using Internet Search Engines to Obtain Medical Information: A Comparative Study

Wang L et al, J Med Internet Res, 14(3)

The Internet has become one of the most important means to obtain health and medical information. It is often the first step in checking for basic information about a disease and its treatment. The search results are often useful to general users. Various search engines such as Google, Yahoo!, Bing, and Ask.com can play an important role in obtaining medical information for both medical professionals and lay people. However, the usability and effectiveness of various search engines for medical information have not been comprehensively compared and evaluated.
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18 May 2012 | No Comments »
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Seeking Support on Facebook: A Content Analysis of Breast Cancer Groups

Bender JL et al, J Med Internet Res, 13(1)

Social network sites have been growing in popularity across broad segments of Internet users, and are a convenient means to exchange information and support. Research on their use for health-related purposes is limited.

This study aimed to characterize the purpose, use, and creators of Facebook groups related to breast cancer.
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7 February 2011 | No Comments »
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The Communication and Care Plan: A novel approach to patient-centered clinical information systems

Hogarth M et al, Journal of Biomedical Informatics, 43(5 S1)

The US health care system and its information access models are organized around institutions and providers. Patient-centered functionality is rarely present in prevailing information systems and, if present, it typically does not ideally support shared decision making about important treatment events.
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12 October 2010 | No Comments »
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The anxious wait: assessing the impact of patient accessible EHRs for breast cancer patients

Wiljer D et al, BMC Medical Informatics and Decision Making, 10(1)

Personal health records (PHRs) provide patients with access to personal health information (PHI) and targeted education. The use of PHRs has the potential to improve a wide range of outcomes, including empowering patients to be more active participants in their care. There are a number of widespread barriers to adoption, including privacy and security considerations. In addition, there are clinical concerns that patients could become anxious or distressed when accessing complex medical information. This study assesses the implementation of a PHR, and its impact on anxiety levels and perceptions of self-efficacy in a sample of breast cancer patients.
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2 September 2010 | No Comments »
Categories: Bibliography, Journal Article, Patients, RA Research, Record Access | Keyword(s): , , , , ,

Illness stories on the internet: what do breast cancer patients want at the end of treatment?

Overberg, Regina et al, Psycho-Oncology, 16(10)

The study aims to elicit user requirements for internet-based applications disclosing fellow patients’ illness stories for the benefit of breast cancer patients. Twenty-six breast cancer patients, recruited via the Dutch Patient Organization for Breast Cancer, were interviewed about their preferences with regards to content, appearance, and search options concerning fellow patients’ illness stories online. The interviews were analysed quantitatively (SPSS) and qualitatively (NVivo). Participants were mainly interested in fellow patients’ experiences about how to cope with emotions, the impact of cancer in daily life, and physical discomforts.
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11 March 2010 | No Comments »
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How breast cancer patients want to search for and retrieve information from stories of other patients on the internet: an online randomized controlled experiment

Overberg, Regina et al, J Med Internet Res, 12(1)

Background: Other patients’ stories on the Internet can give patients information, support, reassurance, and practical advice.

Objectives: We examined which search facility for online stories resulted in patients’ satisfaction and search success.
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11 March 2010 | No Comments »
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Electronic Health Records and the Management of Women at High Risk of Hereditary Breast and Ovarian Cancer

Drohan, Brian et al, The Breast Journal, 15(s1)

Currently, management strategies exist that can decrease the morbidity and mortality associated with having a BRCA1 or BRCA2 mutation. Unfortunately, the task of identifying these patients at high risk is a daunting challenge. This problem is intensified because Electronic Health Records (EHRs) today lack the functionality needed to identify these women and to manage those women once they have been identified. Numerous niche software programs have been developed to fill this gap. Unfortunately, these extremely valuable niche programs are prevented from being interoperable with the EHRs, on the premise that each EHR vendor will build their own programs. Effectively, in our efforts to adopt EHRs, we have lost sight of the fact that they can only have a major impact on quality of care if they contain structured data and if they interact with robust Clinical Decision Support (CDS) tools. We are at a cross roads in the development of the health care Information Technology infrastructure.
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27 September 2009 | No Comments »
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Design of a ’smart’ patient record system for mammography patients

Frigas, Antonis et al, Medical Informatics in a United and Healthy Europe, 2009

One of the most common cancer types among women is breast cancer. Regular mammographic examinations increase the possibility for early diagnosis and treatment and significantly improve the chance of survival for patients with breast cancer. Keeping an informed and complete patient record is of great importance as the doctor needs this information for every patient examination. The proposed implementation is a patient record system that includes ’smart’ algorithms in order to automatically use data from the patient’s record to calculate well established epidemiological breast cancer models.
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15 September 2009 | No Comments »
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The Effect of Credibility-Related Design Cues on Responses to a Web-Based Message About the Breast Cancer Risks From Alcohol: Randomized Controlled Trial

Harris, Peter R. et al, J Med Internet Res, 11(3)

Internet sites typically contain visual design elements that are unrelated to the quality of the health information presented but that could influence credibility judgments and responses to health advice. To assess the effects of such design elements, or credibility cues, experimentally, we exposed women with different levels of weekly alcohol consumption to a website containing high quality but unpalatable information about a related health risk (breast cancer). The information was presented alongside either positive or negative credibility cues unrelated to information content.
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25 August 2009 | No Comments »
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Health-related Internet use by patients with somatic diseases: Frequency of use and characteristics of users va

van Uden-Kraan, Cornelia F. et al, Informatics for Health and Social Care, 34(1)

The aim of this study was to explore the percentage of Dutch patients using the Internet to search for information about their illness. In addition, we studied patients’ usage of health-related Internet applications, such as online patient support groups. The final objective of this study was to explore which demographic, health and psychological characteristics are related to patients’ health-related Internet use.
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23 March 2009 | No Comments »
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Self-Reported Differences in Empowerment Between Lurkers and Posters in Online Patient Support Groups

van Uden-Kraan, Cornelia F. et al, J Med Internet Res, 10(2)

Patients who visit online support groups benefit in various ways. Results of our earlier study indicated that participation in online support groups had a profound effect on the participants’ feelings of “being empowered.” However, most studies of online patient support groups have focused on the members of these groups who actively contribute by sending postings (posters). Thus far, little is known about the impact for “lurkers” (ie, those who do not actively participate by sending postings).
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21 July 2008 | No Comments »
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