the international council on medical & care compunetics


December, 2014

consumer health information

Computer-assisted update of a consumer health vocabulary through mining of social network data

Doing-Harris KM, Zeng-Treitler Q. J Med Internet Res, 13(2)

Consumer health vocabularies (CHVs) have been developed to aid consumer health informatics applications. This purpose is best served if the vocabulary evolves with consumers’ language.

Our objective was to create a computer assisted update (CAU) system that works with live corpora to identify new candidate terms for inclusion in the open access and collaborative (OAC) CHV.
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29 May 2011 | No Comments »
Categories: Bibliography, Journal Article | Keyword(s): , , , ,

Consumer health informatics: results of a systematic evidence review and evidence based recommendations

Gibbons MC et al, Translational Behavioral Medicine, 1(1)

An increasing array of technology based tools are available for patient and consumer utilization which claim to facilitate health improvement. The efficacy of these Consumer Health Informatics tools has not previously been systematically reviewed. As such a systematic evidence review of the efficacy of consumer health informatics tools was conducted. This review also sought evidence of any barriers to future widespread utilization of these tools and evidence of economic impact of these tools on health care costs.
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29 May 2011 | No Comments »
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An International Comparison of Web-based Reporting About Health Care Quality: Content Analysis

Damman OC et al, J Med Internet Res, 12(2)

On more and more websites, consumers are provided with public reports about health care. This move toward provision of more comparative information has resulted in different information types being published that often contain contradictory information.

The objective was to assess the current state of the art in the presentation of online comparative health care information and to compare how the integration of different information types is dealt with on websites. The content analysis was performed in order to provide website managers and Internet researchers with a resource of knowledge about presentation formats being applied internationally.
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13 April 2010 | No Comments »
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Determinants of the frequency of online health information seeking: Results of a Web-based survey conducted in France in 2007

Renahy, Emilie et al, Informatics for Health and Social Care, 35(1)

In the general population, social disparities in Internet practices have been less described than disparities in health information access. Aim is to determine whether there are differences in the frequency of Internet use for health information among health seekers. We conducted an Internet-based survey from November 2006 to March 2007. We considered the 3720 residents of France who had searched for health information during the previous 12 months. This study reveals different uses of the Internet for health information seeking (HIS) between men and women and between the general population and people who work in the health sector. Health status, taking care of somebody who is sick, and active Internet use were associated with higher frequencies of online HIS to varying degrees.
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21 March 2010 | No Comments »
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The experiential health information processing model: supporting collaborative web-based patient education

O'Grady, Laura A. et al, BMC Medical Informatics and Decision Making, 8

First generation Internet technologies such as mailing lists or newsgroups afforded unprecedented levels of information exchange within a variety of interest groups, including those who seek health information. With emergence of the World Wide Web many communication applications were ported to web browsers. One of the driving factors in this phenomenon has been the exchange of experiential or anecdotal knowledge that patients share online, and there is emerging evidence that participation in these forums may be having an impact on people’s health decision making. Theoretical frameworks supporting this form of information seeking and learning have yet to be proposed.
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17 December 2008 | No Comments »
Categories: Journal Article, Record Access | Keyword(s): , , , , , , ,

Autism Consumer Health Web Sites: Are Readability Levels Too High?

Sabo, Robin M., Journal of Consumer Health On the Internet, 12(4)

Are excessively high reading levels creating a barrier for parents seeking information about autism on the Internet? Although the average American reads at the eighth grade level, medical information is frequently written above the twelfth grade level.
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4 December 2008 | No Comments »
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eHealth Trends in Europe 2005-2007: A Population-Based Survey

Kummervold PE et al, J Med Internet Res, 10(4)

In the last decade, the number of Internet users worldwide has dramatically increased. People are using the Internet for various health-related purposes. It is important to monitor such use as it may have an impact on the individual’s health and behavior, patient-practitioner roles, and on general health care provision.
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17 November 2008 | No Comments »
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Consumer Health Information Services 2.0

Mayer, Susan et al, Journal of Consumer Health On the Internet, 12(3)

Web 2.0 functionality is changing the way consumers search for, evaluate, and use health information. What are some of the new “Consumer Health 2.0″ sites and their features? How will this trend toward participatory information processing affect traditional sites such as the National Library of Medicine’s MedlinePlus?
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8 September 2008 | No Comments »
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Evaluation of internet-based technology for supporting self-care: problems encountered by patients and caregivers when using self-care applications

Nijland N et al, J Med Internet Res, 10(2)

Prior studies have shown that many patients are interested in Internet-based technology that enables them to control their own care. As a result, innovative eHealth services are evolving rapidly, including self-assessment tools and secure patient-caregiver email communication. It is interesting to explore how these technologies can be used for supporting self-care.
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27 May 2008 | No Comments »
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Finland’s strategy and implementation of citizens’ access to health information

Ruotsalainen, Pekka et al, Medical and Care Compunetics 5, 2008

The strategy for utilizing information technology in the field of social welfare and health care in Finland was published in 1996. It was redefined in the year 2006. This updated strategy defined basic principles how digitized EHRs should be stored, accessed, disclosed and archived. The strategy together with new legislation opened the right to patients and citizens to access their own EHRs, ePrescriptions and audit-logs via the Internet. A national WEB-service platform forms the base for both public and private eHealth applications.
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22 April 2008 | No Comments »
Categories: 2008, Book Article, Conferences, Patients, RA Research, Record Access | Keyword(s): , , , , , , , , , ,

The Transition from ‘Informed Patient’ Care to ‘Patient Informed’ Care

Gardiner, Ruth, Medical and Care Compunetics 5, 2008

We are in the midst of a real change in the application of information technology to support the delivery of healthcare. We are seeing a shift from the ‘informed patient’ which has resulted from improved access to healthcare information, primarily from the Web, to the ‘participative patient’ as we move into Web 2.0 territory.
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3 April 2008 | 1 Comment »
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Finding the service you need: Human centered design of a Digital Interactive Social Chart in DEMentia care (DEM-DISC)

Roest, H. G. van der et al, Medical and Care Compunetics 5, 2008

Community dwelling people with dementia and their informal carers experience a lot of problems. In the course of the disease process people with dementia become more dependent on others and professional help is often necessary. Many informal carers and people with dementia experience unmet needs with regard to information on the disease and on the available care and welfare offer, therefore they tend not to utilize the broad spectrum of available care and welfare services. This can have very negative consequences like unsafe situations, social isolation of the person with dementia and overburden of informal carers with consequent increased risk of illness for them.
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29 March 2008 | No Comments »
Categories: 2008, Book Article, Conferences | Keyword(s): , , , , , , , , , ,

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