the international council on medical & care compunetics


December, 2014


Healthcare consumers’ attitudes towards physician and personal use of health information exchange

O’Donnell HC et al, Journal of general internal medicine, 26(9)

Health information exchange (HIE), the electronic transmission of patient medical information across healthcare institutions, is on the forefront of the national agenda for healthcare reform. As healthcare consumers are critical participants in HIE, understanding their attitudes toward HIE is essential.
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7 June 2012 | No Comments »
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Surprising Decline in Consumers Seeking Health Information

Tu HT. HSChange Tracking Report No. 26, 2011

In 2010, 50 percent of American adults sought information about a personal health concern, down from 56 percent in 2007, according to a new national study from the Center for Studying Health System Change (HSC). The likelihood of people seeking information from the Internet and from friends and relatives changed little between 2007 and 2010, but their use of hardcopy books, magazines and newspapers dropped by nearly half to 18 percent.
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23 November 2011 | No Comments »
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Low-income, ethnically diverse consumers’ perspective on health information exchange and personal health records

Patel VN et al, Informatics for Health and Social Care, 2011

We surveyed low-income, ethnically diverse consumers regarding their attitudes towards providers’ use of electronic health information exchange (HIE) and consumer use of HIE through personal health records (PHRs). Amongst respondents (n = 214), 48% had an annual household income below $15,000 and 62% spoke a language other than English at home. A majority indicated that they supported providers’ use of HIE (61%). Support for providers’ use of HIE was independently associated with consumer willingness to permit health care providers other than their primary care doctor to view their electronic medical record information (odds ratio (OR) = 2.92, 95% confidence interval (CI) = 1.31–6.50) and beliefs that electronic health record use would improve quality of care (OR = 2.70, 95% CI = 1.18–6.18). Seventy-eight percent would potentially use PHRs.
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21 August 2011 | No Comments »
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Consumer Support for Health Information Exchange and Personal Health Records: A Regional Health Information Organization Survey

Patel VN et al, Journal of Medical Systems, 2010

In order to characterize consumer support for electronic health information exchange (HIE) and personal health records (PHRs) in a community where HIE is underway, we conducted a survey of English speaking adults who visited primary care practices participating in a regional community-wide clinical data exchange, during August, 2008. Amongst the 117 respondents, a majority supported physicians’ use of HIE (83%) or expressed interest in potentially using PHRs (76%).
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15 August 2010 | No Comments »
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Consumer empowerment versus consumer populism in healthcare IT

Simborg DW. J Am Med Inform Assoc, 17(4)

Institutions, providers, and informaticians now encourage healthcare consumers to take greater control of their own healthcare needs through improved health and wellness activities, internet-based education and support groups, and personal health records.
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1 July 2010 | No Comments »
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The public and the Internet: Multifaceted drives for seeking health information

Boot CRL, Meijman FJ. Health Informatics Journal, 16(2)

The aim of this study was to gain insight into people’s drives, or motives, for seeking health information on the Internet. A systematic literature review, restricted to handbooks and reviews, was conducted by searching the databases of various disciplines. Each drive was translated into the context of health information. Five drives were retrieved from the fields of psychology, mass communication, library and information science, and medical science: drives regarding the retrieval of knowledge, social contact or support, tempering uncertainty, entertainment, and self-actualization.
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23 June 2010 | No Comments »
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Using the internet for health-related activities: findings from a national probability sample

Atkinson, Nancy L. et al, J Med Internet Res, 11(1)

eHealth tools on the Internet have the potential to help people manage their health and health care. However, little is known about the distribution and use of different kinds of eHealth tools across the population or within population subgroups.

The purpose of this study was to examine the prevalence and predictors of participation in specific online health-related activities.
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2 April 2010 | No Comments »
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Subword-based Semantic Retrieval of Clinical and Bibliographic Documents

Daumke, P. et al, Methods of Information in Medicine, 49(2)

The increasing amount of electronically available documents in bibliographic databases and the clinical documentation requires user-friendly techniques for content retrieval.

A domain-specific approach on semantic text indexing for document retrieval is presented. It is based on a subword thesaurus and maps the content of texts in different European languages to a common interlingual representation, which supports the search across multilingual document collections.
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19 March 2010 | No Comments »
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How do healthcare consumers process and evaluate comparative healthcare information? A qualitative study using cognitive interviews.

Damman, Olga et al, BMC Public Health, 9(1)

To date, online public healthcare reports have not been effectively used by consumers. Therefore, we qualitatively examined how healthcare consumers process and evaluate comparative healthcare information on the Internet.
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22 November 2009 | No Comments »
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The Consumerisation of Home Healthcare Technologies

Bamigboye, Ade, Handbook of Digital Homecare, 2009

Though widely promoted as needing to play a significant role in future healthcare systems, Digital Homecare could serve to complicate situations for patients and care providers unless it becomes much easier to create, deliver and manage the complex mix of technology, support and services that are appropriate to a patient at a specific time. Any holistic approach to Digital Homecare must be able to support a patients’ Physiological, Physical, Emotional and Environmental care needs. Furthermore, solutions must meet the requirements of patients’ family and friends who will need to take on much more participative supporting roles if Digital Homecare is ever to be deployed on a scale that will alleviate stretched healthcare resources and save the millions of dollars that studies claim can be saved.
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5 October 2009 | No Comments »
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Measuring the Ability to Interpret Medical Information Among the Japanese Public and the Relationship With Inappropriate Purchasing Attitudes of Health-Related Goods

Takahashi Y et al, Asia-Pacific Journal of Public Health, 2009

To investigate the relationship with uncritical purchasing attitudes toward health-related goods, the authors devised a test for ability to interpret medical information (TAIMI) among the Japanese public, designed to measure numeracy, literacy, and also critical appraising skills. An online survey was conducted, and 6047 participants were randomly chosen from the Japanese public and 36 physicians. TAIMI score for the public was 3.9 +/- 1.7 (mean +/- standard deviation); the physicians’ was higher at 6.2 +/- 1.3 (P < .01).
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3 September 2009 | No Comments »
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Focus: Personal Health Records Assessing HIE Stakeholder Readiness for Consumer Access

Dixon, Brian E. et al, Journal of Healthcare Information Management, 23(3)

Personal health records (PHRs) have the potential to empower patient decision-making. Integrating PHRs into the nation’s health information infrastructure via the Nationwide Health Information Network (NHIN) may accelerate their adoption and use. PHR and NHIN technical development activities are advancing, but little is known about provider acceptance of PHR usage in this manner. Researchers conducted semi-structured interviews with organizations participating in an operational health information exchange to elicit opinions regarding such integration.
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24 August 2009 | No Comments »
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Personal health records for consumers of healthcare

Gerard MN et al, Journal of Healthcare Information Management, 23(3)

Personal health records (PHRs) consist of medical records that the consumer collects from each of their healthcare providers, plus any health information that the consumer adds. Sharing information from the PHR with providers enables the consumer and provider to work together. Use of data in the PHR can help reduce or eliminate duplicate procedures or processes. This helps save time and healthcare dollars.
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24 August 2009 | No Comments »
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Improving healthcare consumer effectiveness: An Animated, Self-serve, Web-based Research Tool (ANSWER) for people with early rheumatoid arthritis

Li, Linda C. et al, BMC Medical Informatics and Decision Making, 9(1)

People with rheumatoid arthritis (RA) should use DMARDs (disease-modifying anti-rheumatic drugs) within the first three months of symptoms in order to prevent irreversible joint damage. However, recent studies report the delay in DMARD use ranges from 6.5 months to 11.5 months in Canada. While most health service delivery interventions are designed to improve the family physician’s ability to refer to a rheumatologist and prescribe treatments, relatively little has been done to improve the delivery of credible, relevant, and user-friendly information for individuals to make treatment decisions. To address this care gap, the Animated, Self-serve, Web-based Research Tool (ANSWER) will be developed and evaluated to assist people in making decisions about the use of methotrexate, a type of DMARD. The objectives of this project are: 1) to develop ANSWER for people with early RA; and 2) to assess the extent to which ANSWER reduces people’s decisional conflict about the use of methotrexate, improves their knowledge about RA, and improves their skills of being ‘effective healthcare consumers’.
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21 August 2009 | No Comments »
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Personal Health Records: Directing More Costs and Risks to Consumers?

Terry, Nicolas P., SSRN eLibrary

This article is principally concerned with a subset of electronic health records known as personal health records. In contrast to the more familiar charts, paper records, and electronic medical records maintained by health care providers, personal health records are medical records created and maintained by patients.
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15 August 2009 | No Comments »
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Educating patients to evaluate web-based health care information: the GATOR approach to healthy surfing

Weber, Bryan A. et al, Journal of Clinical Nursing, Published online

Aims and objectives.
Teaching patients to assess web resources effectively has become an important need in primary care. The acronym GATOR (genuine, accurate, trustworthy, origin and readability), an easily memorized strategy for assessing web-based health information, is presented in this paper.
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9 July 2009 | No Comments »
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A Systematic Review of Patient Acceptance of Consumer Health Information Technology

Or, Calvin K. L., and Ben-Tzion Karsh, J Am Med Inform Assoc, 16(4)

A systematic literature review was performed to identify variables promoting consumer health information technology (CHIT) acceptance among patients. The electronic bibliographic databases Web of Science, Business Source Elite, CINAHL, Communication and Mass Media Complete, MEDLINE, PsycArticles, and PsycInfo were searched. A cited reference search of articles meeting the inclusion criteria was also conducted to reduce misses. Fifty-two articles met the selection criteria. Among them, 94 different variables were tested for associations with acceptance. Most of those tested (71%) were patient factors, including sociodemographic characteristics, health- and treatment-related variables, and prior experience or exposure to computer/health technology.
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5 July 2009 | No Comments »
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Healthcare Disparities and the Role of Personal Health Records

Garvin, Jennifer et al, Journal of AHIMA, 80(6)

The Institute of Medicine defines disparities in healthcare as racial or ethnic differences in the quality of healthcare that are not due to access-related factors or clinical needs preferences, and appropriateness of intervention.
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5 June 2009 | No Comments »
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A Literature Review of Developments in Health Information Banks

Yung, Alan, and Yan Yan Li, ElectronicHealthcare, 7(4)

“A health information bank (HIB) is an organization that allows consumers of health services to collect, store, control and share health information with members in their circle of care. The term was first coined by Bill Dodd in 1998, and was revisited by Prof. Denis Protti in 2008.
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17 April 2009 | No Comments »
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Your Doctor’s Office or the Internet? Two Paths to Personal Health Records

Tang PC, Lee TH. N Engl J Med, 360(13)

Mary is 68 years old, has four chronic conditions, takes seven medications, and averages 12 visits per year to her six physicians. In between visits, she spends a lot of time on the telephone with them or their staff – making appointments, requesting prescription renewals and referrals, seeking test results, and asking questions that she forgot to bring up in person.
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25 March 2009 | No Comments »
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