the international council on medical & care compunetics


December, 2014


Giving Patients Granular Control of Personal Health Information: Using an Ethics ‘Points to Consider’ to Inform Informatics System Designers

There are benefits and risks of giving patients more granular control of their personal health information in electronic health record (EHR) systems. When designing EHR systems and policies, informaticists and system developers must balance these benefits and risks. Ethical considerations should be an explicit part of this balancing. Our objective was to develop a structured ethics framework to accomplish this.

We reviewed existing literature on the ethical and policy issues, developed an ethics framework called a “Points to Consider” (P2C) document, and convened a national expert panel to review and critique the P2C.
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11 September 2013 | No Comments »
Categories: Bibliography, Journal Article, Patients, RA Research | Keyword(s): , , , , , , , , ,

A suggestion for future research on interface design of an internet-based telemedicine system for the elderly

Chuna YJ, Patterson PE. Work, 41(Suppl. 1)

Telemedicine has emerged as an effective tool for providing high quality healthcare service and health-related information, especially in rural areas. Rural areas often have a larger elderly population with greater rates of preventable disease. These areas also have fewer medical resources and specialists, and have limited access to health services, all of which can influence overall health. An internet-based telemedicine system can be one solution to provide the rural elderly with the proper health information when needed.
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23 February 2012 | No Comments »
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Requirements and Design for Smart Healthcare Applications

Stevenson D. electronic Journal of Health Informatics, 6(2)

When developing a “smart healthcare” application that takes the participants beyond their experience of the conventional analogue of that application, a challenge is to gather the requirements for the application and to map those requirements onto a successful design. Some requirements will come from the conventional way of delivering the healthcare service. Some will come from the domains of the technologies that have been used to create the smart healthcare application. Some requirements, however, particularly for point-of-care applications, will emerge from the interplay of the actual clinical situation and the novelty of the smart healthcare application.
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5 October 2011 | No Comments »
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Design of medical devices–a home perspective

Bitterman N. European Journal of Internal Medicine, 22(1)

Health care services are moving out to the community and into the home; e-health services, remote monitoring technology and self-management are replacing hospitalization and visits to medical clinics and custom-tailored medicines are making inroads into normative treatment. These developments have great implications for the scope and design of home health care equipment. The paper discusses the unique nature of home medical devices, from a human-environment-machine perspective, focusing on the nature of users, environment and tasks performed. We call for increased awareness and active continuous involvement of health care personnel together with bioengineers, human factors experts, architects, designers and end users–patients and caregivers–in defining the objectives of health care devices and services at home in terms of “all family” use, integrated into the overall surroundings (”smart home”), and as part of a collaborative patient-physician disease management team.

15 May 2011 | No Comments »
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[An evaluation of the quality of health web pages using a validated questionnaire.]

Conesa Fuentes MDC, Atencion Primaria, 43(1)

The objective of the present study was to evaluate the quality of general health information in Spanish language web pages, and the official Regional Services web pages from the different Autonomous Regions. DESIGN: It is a cross-sectional study. We have used a previously validated questionnaire to study the present state of the health information on Internet for a lay-user point of view.
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23 January 2011 | No Comments »
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An evaluation of telehealth websites for design, literacy, information and content

Whitten P et al, J Telemed Telecare, 17(1)

We examined 62 telehealth websites using four assessment criteria: design, literacy, information and telehealth content. The websites came from the member list of the American Telemedicine Association and the Office for the Advancement of Telehealth and partner sites, and were included if they were currently active and at least three clicks deep. Approximately 130 variables were examined for each website by two independent researchers.
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17 January 2011 | No Comments »
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Design and Implementation of a Telecare Information Platform

Li S et al, Journal of Medical Systems, 2010

For the aging population and for people with dominant chronic diseases, countries all over the world are promoting an “Aging in Place” program with its primary focus on the implementation of telecare. In 2009, Taiwan held a “Health Care Value-Added Platinum Program” with the goal of promoting the development of “Telecare” services by integrating medical treatment, healthcare, information communication, medical equipments and materials and by linking related cross-discipline professions to enable people to familiarize themselves with preventive healthcare services offered in their household and community environments. In addition, this program can be utilized to effectively provide diversified healthcare service benefitting society as a whole.
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10 December 2010 | No Comments »
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Health information technology: fallacies and sober realities

Karsh B et al, J Am Med Inform Assoc, 17(6)

Current research suggests that the rate of adoption of health information technology (HIT) is low, and that HIT may not have the touted beneficial effects on quality of care or costs. The twin issues of the failure of HIT adoption and of HIT efficacy stem primarily from a series of fallacies about HIT.
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24 October 2010 | No Comments »
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Wireless Body Area Network (WBAN) Design Techniques and Performance Evaluation

Khan JY et al, Journal of Medical Systems, 2010

In recent years interest in the application of Wireless Body Area Network (WBAN) for patient monitoring applications has grown significantly. A WBAN can be used to develop patient monitoring systems which offer flexibility to medical staff and mobility to patients. Patients monitoring could involve a range of activities including data collection from various body sensors for storage and diagnosis, transmitting data to remote medical databases, and controlling medical appliances, etc. Also, WBANs could operate in an interconnected mode to enable remote patient monitoring using telehealth/e-health applications.
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20 October 2010 | No Comments »
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Project HealthDesign: Rethinking the power and potential of personal health records

Brennan PF et al, Journal of Biomedical Informatics, 43(5 S1)

Project HealthDesign, a multi-year, multi-site project sponsored by the Robert Wood Johnson Foundation with additional support from the California HealthCare Foundation, is designed to stimulate innovation in personal health records (PHRs). Project HealthDesign teams employed user-centered design processes to create designs and prototypes of computer-based applications to support and enhance human health for a wide range of patients, from children with chronic health conditions to elders transitioning from hospital to home.
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12 October 2010 | No Comments »
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Tile-Ippokratis: The Experience of an Ehealth Platform for the Provision of Health Care Services in the Island of Chios and Cyprus

Papadopoulos H. International Journal of Telemedicine and Applications, 2010

Tile-Ippokratis proposed an integrated platform for the provision of low-cost ehealth services to citizens in southeast Mediterranean area (Island of Chios and Cyprus). The aim of the paper is to present the architecture, the design, and the evaluation results of this platform. The platform based on already evaluated state-of-the-art mobile ehealth systems and using wireless and terrestrial telecommunication networks is able to provide the following health care services
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8 September 2010 | No Comments »
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A theoretical model of health information technology usage behaviour with implications for patient safety

Holden RJ, Karsh B. Behaviour & Information Technology, 28(1)

Primary objective:
Much research and practice related to the design and implementation of information technology in health care has been atheoretical. It is argued that using extant theory to develop testable models of health information technology (HIT) benefits both research and practice.
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5 August 2010 | No Comments »
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Design and implementation of a standards-based interoperable clinical decision support architecture in the context of the Korean EHR

Cho I et al, International Journal of Medical Informatics, 79(2)

In 2000 the Korean government initiated efforts to secure healthcare accessibility and efficiency anytime and anywhere via the nationwide healthcare information system by the end of 2010. According to the master plan, electronic health record (EHR) research and development projects were designed in 2005. One subproject was the design and implementation of standards-based interoperable clinical decision support (CDS) capabilities in the context of the EHR system.
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11 July 2010 | No Comments »
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[Wireless device for monitoring the patients with chronic disease]

Ciorap R et al, Revista medico-chirurgicală̆ a Societă̆ţ̜ii de Medici ş̧i Naturaliş̧ti din Iaş̧i, 112(4)

Remote monitoring of chronic diseases can improve health outcomes and potentially lower health care costs. The high number of the patients, suffering of chronically diseases, who wish to stay at home rather then in a hospital increasing the need of homecare monitoring and have lead to a high demand of wearable medical devices. Also, extended patient monitoring during normal activity has become a very important target.
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13 May 2010 | No Comments »
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The Role of Human Factors in Telehealth

Demiris G et al, Telemedicine and e-Health, 16(4)

The purpose of this article is to provide an overview of the field of human factors (HFs) and its role in telehealth. We discuss HF concepts and methodologies that affect the design, implementation, and evaluation of telehealth applications and provide examples from numerous application areas that highlight the significance of HF principles and methodologies.
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7 May 2010 | No Comments »
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The University of Michigan Honest Broker: a Web-based service for clinical and translational research and practice

Boyd, Andrew D. et al, J Am Med Inform Assoc, 16(6)

For the success of clinical and translational science, a seamless interoperation is required between clinical and research information technology. Addressing this need, the Michigan Clinical Research Collaboratory (MCRC) was created. The MCRC employed a standards-driven Web Services architecture to create the U-M Honest Broker, which enabled sharing of clinical and research data among medical disciplines and separate institutions. Design objectives were to facilitate sharing of data, maintain a master patient index (MPI), deidentification of data, and routing data to preauthorized destination systems for use in clinical care, research, or both.
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15 November 2009 | No Comments »
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A Multi-Modal Health and Activity Monitoring Framework for Elderly People at Home

Marsh, Andrew J et al, Handbook of Digital Homecare, 2009

Since the population of elderly people grows absolutely and in relation to the overall population in the world, the improvement of the quality of life of elderly people at home is of a great importance. This can be achieved through the development of generic technologies for managing their domestic ambient environment consisting of medical sensors, entertainment equipment, home automation systems and white goods, increasing their autonomy and safety.
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5 October 2009 | No Comments »
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A Multi-disciplinary Approach towards the Design and Development of Value+ eHomeCare Services

Ackaert, Ann et al, Handbook of Digital Homecare, 2009

Do you need spells, magic potions or wizard’s knowledge to approach the eHomeCare market in a successful way? The design and development of eHomeCare services consumes a lot of effort, time and money. Needs and value chain aspects of the eHealth(care) market are complex and sometimes unexpected factors arise during the introduction and first use of technology in the homecare setting. Take up ratios of new products and services are furthermore critical in the return on investment curve.
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5 October 2009 | No Comments »
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Describing and modeling workflow and information flow in chronic disease care

Unertl, Kim M. et al, J Am Med Inform Assoc, PrePrint

The goal of the study was to develop an in-depth understanding of work practices, workflow, and information flow in chronic disease care, to facilitate development of context-appropriate informatics tools. Design The study was conducted over a 10-month period in three ambulatory clinics providing chronic disease care. We iteratively collected data using direct observation and semi-structured interviews.
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31 August 2009 | No Comments »
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The Effect of Credibility-Related Design Cues on Responses to a Web-Based Message About the Breast Cancer Risks From Alcohol: Randomized Controlled Trial

Harris, Peter R. et al, J Med Internet Res, 11(3)

Internet sites typically contain visual design elements that are unrelated to the quality of the health information presented but that could influence credibility judgments and responses to health advice. To assess the effects of such design elements, or credibility cues, experimentally, we exposed women with different levels of weekly alcohol consumption to a website containing high quality but unpalatable information about a related health risk (breast cancer). The information was presented alongside either positive or negative credibility cues unrelated to information content.
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25 August 2009 | No Comments »
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