the international council on medical & care compunetics


December, 2014


What electronic health records don’t know just yet. A privacy analysis for patient communities and health records interaction

Wuyts K et al, Health and Technology, 2012

The advent of Web 2.0 has resulted in the emergence of a new generation of user-centric applications. Healthcare too follows this trend and a whole range of health-related applications are being introduced. Electronic health record (EHR) systems are being developed to enable electronic storing and sharing of medical data between health practitioners. Recently, initial steps have been taken to evolve toward cross-border sharing of EHR data. Patients also become more involved in their healthcare and start storing their health data online in personal health record (PHR) systems or look for online support and medical advice from other patients with similar diseases or treatments. The consolidation of these different systems is described as a promising approach to bring healthcare to a higher level.
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30 May 2012 | No Comments »
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Giving rheumatology patients online home access to their electronic medical record (EMR): advantages, drawbacks and preconditions according to care providers

van der Vaart R et al, Rheumatology International, 2012

Technology enables patients home access to their electronic medical record (EMR), via a patient portal. This study aims to analyse (dis)advantages, preconditions and suitable content for this service, according to rheumatology health professionals. A two-phase policy Delphi study was conducted. First, interviews were performed with nurses/nurse practitioners (n = 9) and rheumatologists (n = 13). Subsequently, collected responses were quantified, using a questionnaire among the interviewees. The following advantages of patient home access to the EMR were reported: (1) enhancement of patient participation in treatment, (2) increased knowledge and self-management, (3) improved patient-provider interaction, (4) increased patient safety, and (5) better communication with others. Foreseen disadvantages of the service included: (1) problems with interpretation of data, (2) extra workload, (3) a change in consultation content, and (4) disturbing the patient-provider interaction.
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4 April 2012 | No Comments »
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Electronic health record goes personal world-wide

Li YC et al, Yearbook of Medical Informatics, 2009(1)

Increasing patient demand for convenient access to their own healthcare data has led to more personal use of the Electronic Health Record (EHR). With “consumer empowerment” being an important issue of EHR, we are seeing a more “patient-centric” approach of EHR from countries around the world. Researchers have reported on issues in EHR sharing including concerns on privacy and security, consumer empowerment, competition among providers, and content standards. This study attempts to analyze prior research and to synthesize comprehensive, empirically-based conceptual models of EHR for personal use.
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29 January 2012 | No Comments »
Categories: Bibliography, Journal Article, Patients, RA Research, Record Access | Keyword(s): , , ,

An empowerment-based approach to developing innovative e-health tools for self-management

Alpay L et al, Health Informatics Journal, 17(4)

E-health is seen as an important technological tool in achieving self-management; however, there is little evidence of how effective e-health is for self-management. Example tools remain experimental and there is limited knowledge yet about the design, use, and effects of this class of tools. By way of introducing a new view on the development of e-health tools dedicated to self-management we aim to contribute to the discussion for further research in this area.
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4 January 2012 | No Comments »
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Empowerment, patient centred care and self-management

Pulvirenti M et al, Health Expectations, 2011

Patient or person centred care is widely accepted as the philosophy and practice that underpins quality care. An examination of the Australian National Chronic Disease Strategy and literature in the field highlights assumptions about the self-manager as patient and a focus on clinical settings.
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3 January 2012 | No Comments »
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The empowerment and quality health value propositions of e-health

Asoh DA, Rivers PA. Health Serv Manage Res, 23(4)

E-health, as well as its value and benefits, has been characterized as a concept defined in various ways depending on intended audience and use. Attempts to define, characterize and appreciate e-health inadvertently portray it as something out of main stream academia; thus, undermining the relevance and importance of the transformation capabilities of e-health on the practice of health care from the individual and organizational perspectives. In order to contribute towards an understanding and appreciation of e-health as a main stream concept, we propose the use of existing models, theories and principles in support of e-health.
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23 November 2010 | No Comments »
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What can be expected of information and communication technologies in terms of patient empowerment in health?

Lemire M. Journal of Health Organization and Management, 24(2)

Implementing information and communication technologies (ICT) is often mentioned as a strategy that can foster public involvement and responsibility in health. The purpose of this paper is to provide a better understanding of the possibilities and issues afforded by the social uses of ICT for personal empowerment in health.
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19 October 2010 | No Comments »
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Empowering patients with COPD using Tele-homecare technology

Huniche L et al, Seamless Care – Safe Care, 2010

This paper discusses how a tele-rehabilitation program using home tele-monitoring may empower patients with chronic obstructive pulmonary disease (COPD). The paper is based on preliminary findings from an ongoing research and innovation project, called “Tele-homecare, chronic patients and the integrated healthcare system” (the TELEKAT project) that employs triple interventions related to patients, professionals, and the organization of care.
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24 September 2010 | No Comments »
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Consumer empowerment versus consumer populism in healthcare IT

Simborg DW. J Am Med Inform Assoc, 17(4)

Institutions, providers, and informaticians now encourage healthcare consumers to take greater control of their own healthcare needs through improved health and wellness activities, internet-based education and support groups, and personal health records.
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1 July 2010 | No Comments »
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Electronic medical records in diabetes consultations: participants’ gaze as an interactional resource

Rhodes P et al, Qualitative Health Research, 18(9)

Two routine consultations in primary care diabetes clinics are compared using extracts from video recordings of interactions between nurses and patients. The consultations were chosen to present different styles of interaction, in which the nurse’s gaze was either primarily toward the computer screen or directed more toward the patient. Using conversation analysis, the ways in which nurses shift both gaze and body orientation between the computer screen and patient to influence the style, pace, content, and structure of the consultation were investigated.
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16 May 2010 | No Comments »
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Focus: Personal Health Records Assessing HIE Stakeholder Readiness for Consumer Access

Dixon, Brian E. et al, Journal of Healthcare Information Management, 23(3)

Personal health records (PHRs) have the potential to empower patient decision-making. Integrating PHRs into the nation’s health information infrastructure via the Nationwide Health Information Network (NHIN) may accelerate their adoption and use. PHR and NHIN technical development activities are advancing, but little is known about provider acceptance of PHR usage in this manner. Researchers conducted semi-structured interviews with organizations participating in an operational health information exchange to elicit opinions regarding such integration.
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24 August 2009 | No Comments »
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Personal health records for consumers of healthcare

Gerard MN et al, Journal of Healthcare Information Management, 23(3)

Personal health records (PHRs) consist of medical records that the consumer collects from each of their healthcare providers, plus any health information that the consumer adds. Sharing information from the PHR with providers enables the consumer and provider to work together. Use of data in the PHR can help reduce or eliminate duplicate procedures or processes. This helps save time and healthcare dollars.
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24 August 2009 | No Comments »
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IVF and Internet – Evaluation of an Interactive Personal Health Record for IVF Patients

Tuil, Wouter S., 2008

The internet is rapidly revolutionizing healthcare. It contributes to the development of new ways of health promotion, disease prevention and the treatment of medical problems. Patient access to the hospitals Electronic Health Record (EHR) is seen as an important step towards patient empowerment, one of the main focal points in modern day healthcare redesign.
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6 November 2008 | No Comments »
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Experience-based Information: The Role of Web-based Patient Networks in Consumer Health Information Services

Scola-Streckenbach, Susan, Journal of Consumer Health On the Internet, 12(3)

The prevalence of Web-based patient networks creates a substantial need for health information professionals to consider the qualities of such patient-mediated communities.
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8 September 2008 | No Comments »
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Self-Reported Differences in Empowerment Between Lurkers and Posters in Online Patient Support Groups

van Uden-Kraan, Cornelia F. et al, J Med Internet Res, 10(2)

Patients who visit online support groups benefit in various ways. Results of our earlier study indicated that participation in online support groups had a profound effect on the participants’ feelings of “being empowered.” However, most studies of online patient support groups have focused on the members of these groups who actively contribute by sending postings (posters). Thus far, little is known about the impact for “lurkers” (ie, those who do not actively participate by sending postings).
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21 July 2008 | No Comments »
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Telemedicine Endurance – Empowering Care Recipients in Asian Telemedicine Setup

Bhatia, Jagjit Singh, and Sagri Sharma, Medical and Care Compunetics 5 2008

To optimize the medical resources in India and Asia empowering the patients with e-health services in order to justify the multi-specialty healthcare provided to the rural and remote areas is the need of the hour. C-DAC Mohali is working in this direction since 1999 and deployed the technology for the amelioration of the rural Indian population. We bring home the bacon by a broad spectrum of professional quality. Telemedicine products and customized solutions that fit within any budget constraint.
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31 March 2008 | No Comments »
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