the international council on medical & care compunetics


December, 2014


The Ethics of Electronic Health Records

John J. Mercuri, Clinical Correlations, 15 January 2010

John Mercuri effectively argues the importance of applying ethical standards to the current debate on EHRs. Patient ownership of their data, in terms of both content and privacy, is key. As electronic patient records (albeit stripped of their protected health information) are sought by pharmaceutical and insurance companies, policy-makers, and researchers, there is great potential for both financial and personal harm to individuals if the data are not fully protected.
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16 January 2010 | 1 Comment »
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Adopting Confidentiality Principles for Electronic Health Records in Iran: A Delphi Study

Farzandipour, Mehrdad et al, Journal of Medical Systems, online first

A growing capacity of information technologies in collection, storage and transmission of information has added a great deal of concerns since electronic records can be accessed by numerous consumers at various locations. Thus, the basic question is “what kind of Model is suitable for guaranteeing the confidentiality of EHR information in Iran?” The present study is a descriptive investigation made in Iran in 2007.
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22 September 2009 | No Comments »
Categories: Journal Article, RA Research, Record Access | Keyword(s): , , , , , , ,

The case for public ownership of patient data

Rodwin, Marc A., JAMA, 302(1)

The allocation of $19 billion by the US Congress to promote the adoption of electronic medical records makes feasible the collection of aggregate patient data that could vastly improve patient safety, public health monitoring, and medical knowledge. The US Food and Drug Administration could ascertain the percentage of patients who experienced adverse reactions from a specific drug, then warn physicians or take other action.
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13 July 2009 | No Comments »
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The Limits of Free Speech: The PHR Problem

Simborg, Donald W., J Am Med Inform Assoc, 16(3)

Patients own their medical records. This truth has had a difficult history for those of us who wish to have a single record of our health, wellness, and disease and want to convey that record to whomever we wish whenever we wish. The lack of interoperability among the many sources of our medical record, coupled with the hassle associated with obtaining a copy of one or more of the fragments of our record under the control of providers, has been and continues to be a consumer frustration.
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6 May 2009 | No Comments »
Categories: Journal Article, Patients, RA Research, Record Access | Keyword(s): , , , , , , , , ,

Ownership of Medical Information

Mark A. Hall, and Kevin A. Schulman, JAMA. 2009;301(12)

Who owns medical information? The one who gives care, receives care, or pays for care? All of the above? None of the above? Does it really matter?
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25 March 2009 | No Comments »
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Inter-organizational future proof EHR systems: A review of the security and privacy related issues

Linden, Helma van der et al, International Journal of Medical Informatics, 78(3)

Identification and analysis of privacy and security related issues that occur when health information is exchanged between health care organizations.

Based on a generic scenario questions were formulated to reveal the occurring issues. Possible answers were verified in literature.
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10 February 2009 | No Comments »
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The Rise of the Personal Health Record: Panacea or Pitfall for Health Information

Coffield, Robert L., and Gerald E. DeLoss, Health Lawyers News, 12(10)

Giant bytes have been taken out of the personal health record (PHR) market by technology companies like Google, Microsoft, Dossia, and others on a mission to connect consumers with their health information. If successful, the efforts by these and other Health 2.0 technology companies could transform the healthcare industry.
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20 October 2008 | No Comments »
Categories: Journal Article, RA Legal, Record Access | Keyword(s): , , , , , ,

Whose Record Is It Anyway? Putting Patients’ Interests at the Heart of the Implementation and Use of Electronic Medical Records

Mador, Rebecca L. et al, ElectronicHealthcare, 7(2)

With the dawn of electronic medical records (EMRs) and patient portals, there is an unprecedented opportunity to provide truly collaborative patient-centred care. These tools can promote communication between healthcare providers and patients, improve chronic disease management and enable patients to become active members in the healthcare delivery system, but only if the tools work for everyone involved – including patients.
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24 September 2008 | No Comments »
Categories: Journal Article, RA News, Record Access | Keyword(s): , , , , ,

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